Skip to content

Living the Chronic Illness Life

Intentionally Living + Chronically Cultivating Spoon By Spoon

  • Hello
  • About
    • Our Mission
    • Meet the Team
    • Community Guidelines
    • Our Love Story
    • EDS Information
    • Dysautonomia Information
    • RSD/CRPS Information
    • Foxy Film
  • Blog
  • Grace + Goals Resources
    • Start Here
    • A Cultivated Life
    • Community, Coaching, and Classes
      • Powersheets Coaching
        • A Cultivated Life: Quarterly Goal Coaching + Accountability
        • 2023 Prep Work Coaching
        • Goal Action Planning Session
        • 2023 Powersheets Prep Work Inserts PDF Packet
      • Accountability Collective
      • Community Calls!
      • Live Master Classes
    • Let’s Get Goal-ing!
    • Wildcard Downloads
    • Shop Powersheets
    • Making Your Powersheets Your Own!
    • Tending List + Refresh Gallery
    • Grace + Goals FAQ
    • The PSP Gals!
    • Grace + Goals Directory
  • Chronically Cultivating
  • Shop
    • Living the Chronic Illness Life Apparel
    • Cultivate What Matters
    • Hopsital Masks
      • How it all started
  • Spoonie Study
    • About
    • SS 2020: It’s Not Supposed To Be This Way
      • Intro Chapter Week
      • Chapter 1: Between Two Gardens
      • Chapter 2: Dust
      • Cultivating Life at Home Resources + Action Steps
      • Chapter 3: But How Do I Get Through The Next 84,000 Seconds
      • Chapter 4: Tan Feet
      • Chapter 5: Paintings and People
      • Chapter 6: A Little Too Long and A Lot Too Hard
      • Chapter 7: When God Gives You More Than You Can Handle
      • Chapter 8: Letting Go Of What’s Holding Me Back
      • Chapter 9: Exposing the Enemy
      • Chapter 10: Fighting Words
    • SS 2019: Cultivate
      • Intro Week: Welcome to the Thick of It
      • Chapter 1: Cultivate What Matters
      • Chapter 2: Embrace Your Season
      • Chapter 3: Dream Like a Gardener
      • Chapter 4: Nourish Your Soil
      • Chapter 5: Plant Your Seeds
      • Chapter 6: Grow in the Wait
      • Chapter 7: Tend Your Garden
      • Chapter 8: Harvest Contentment
      • Chapter 9: Flourish With Others
      • Chapter 10: Preserve the Fruit
  • Contact

Category: EDS + Co Awareness

What’s Ahead… and how you can help 💛

October 28, 20223 Comments

In this season, I have been delighted to dive deep into building the Grace + Goals Community. In doing so, the blog has taken a backseat other than sharing my goals. Today, I want to share what is ahead and how that will affect my presence here (here meaning the blog, Grace + Goals, and … Continue reading What’s Ahead… and how you can help 💛

5 Must Haves when Traveling with a Chronic Illness

January 9, 2022January 16, 20221 Comment

A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness

Things that should come with an EDS Diagnosis

May 11, 2021May 11, 2021Leave a comment

It's May which means it's EDS Awareness month! I've been living the chronic illness life since 2010, and have been officially diagnosed with Ehlers Danlos Syndrome since 2015. There are so many things that I wish I knew in the beginning, so today I want to share the items that have helped me make life … Continue reading Things that should come with an EDS Diagnosis

The Joy of the Lord is my Strength

July 3, 2020July 3, 20201 Comment

A lot led up to you and me meeting here today. Living the chronic illness life is hard and I think it's safe to say that we all struggle to feel/experience joy. Joy was an emotion for so long that I lacked and even envied because I misunderstood it. Nowadays I talk a lot about … Continue reading The Joy of the Lord is my Strength

Accessible Gardening

April 23, 2020May 7, 20207 Comments

If you've been following for a while now you know I LOVE plants and gardening. Not being able to bend down and plant outside or get outside unassisted made the thought of gardening in anything more than pots seem impossible. I have loved my windowsill garden and have been maintaining that for two years, but … Continue reading Accessible Gardening

5 Tips for Traveling for Out-of-State Surgery

March 12, 2020March 10, 2020Leave a comment

When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me.  My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery

Let’s talk about EDS

May 24, 2019February 20, 2020Leave a comment

May is Ehlers Danlos Syndrome awareness month, I have not been as active as I would have liked due to a dislocation this month. Nevertheless I reached out to all of you on instagram and asked you to send me the questions you have about EDS. Because I got an overload of questions, I am … Continue reading Let’s talk about EDS

Search here

Instagram

I am bringing ALLLL the color this February!!
You will see more progress, when you plan for imperfect progress 💡
Intense schedules, perfect consistency, and Powersheets won’t guarantee you to long term sustainable growth.
Do you find that you try to do it all and keep starting your goals off strong, but your progress seems to dwindle over time?
When it comes to checking into your Tending List, you need to know these three things:
What would happen if you had accountability in your goal setting?

Blog Categories

  • Beauty
  • EDS + Co Awareness
  • Favorite Things
  • Goal Setting + #powersheets
  • Guest Blogs
  • In The Garden
  • Lifestyle
    • Cultivating In Qaurantine
  • Relationship with God
    • Christian Living
    • Devotional
  • Relationships
    • Family + Friendships
  • The PSP Gals
  • Wedding

Join the Community!

Thanks for putting us in the top 100 Chronic Illness Blogs!

  • Instagram
  • Facebook
  • YouTube
  • Facebook
  • Off Season Training
  • Instagram
Create a website or blog at WordPress.com
  • Follow Following
    • Living the Chronic Illness Life
    • Join 245 other followers
    • Already have a WordPress.com account? Log in now.
    • Living the Chronic Illness Life
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...