A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness
It's May which means it's EDS Awareness month! I've been living the chronic illness life since 2010, and have been officially diagnosed with Ehlers Danlos Syndrome since 2015. There are so many things that I wish I knew in the beginning, so today I want to share the items that have helped me make life … Continue reading Things that should come with an EDS Diagnosis
A lot led up to you and me meeting here today. Living the chronic illness life is hard and I think it's safe to say that we all struggle to feel/experience joy. Joy was an emotion for so long that I lacked and even envied because I misunderstood it. Nowadays I talk a lot about … Continue reading The Joy of the Lord is my Strength
If you've been following for a while now you know I LOVE plants and gardening. Not being able to bend down and plant outside or get outside unassisted made the thought of gardening in anything more than pots seem impossible. I have loved my windowsill garden and have been maintaining that for two years, but … Continue reading Accessible Gardening
When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me. My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery
May is Ehlers Danlos Syndrome awareness month, I have not been as active as I would have liked due to a dislocation this month. Nevertheless I reached out to all of you on instagram and asked you to send me the questions you have about EDS. Because I got an overload of questions, I am … Continue reading Let’s talk about EDS
Living the Chronic Illness Life 