You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it
Every morning starts out relatively the same for me: achy joints, jumping heart rates, nausea, low blood sugars- the list goes on. Then there are those other mornings, the ones that feel like death is upon you. I am sure you know what I am talking about. On days like that I have trouble being … Continue reading Three Things… You just need Three
Dear Fellow Spoonie, First of all I want to say that I am sorry. I am sorry that your life didn't go the way you planned and I am sorry for the heartbreak you have had or are currently bearing. I am sorry for everything you have and will have to give up because of … Continue reading An Open Letter to the Spoonie who has had to Reinvent Themselves
As I prepare to go into the OR on Thursday, I am getting all my ducks in a row so I don't have to worry about everything. My sole focus needs to be on recovering. Let me start out by saying, I am a control freak and that's no secret. Therefore, it stresses me out knowing … Continue reading 10 Small Things You Can Do to make Your Recovery a Little Easier
Okay so like... the struggle is very real when you are packing for a trip with a chronic illness. Most of my trips over the past 5 months have been to the hospital- so there are many things that I do not need to worry about because they either have the things I need or … Continue reading The Struggles of Packing with a Chronic Illness
How do you celebrate Thanksgiving when it's hard to be thankful? This has been on my mind a lot this past week. It can be hard to be thankful when there is so much broken in our world, in our lives, and for us spoonies, in our bodies too. Right now I have so much … Continue reading How to celebrate Thanksgiving even when it’s hard to be Thankful.
Going into a procedure, big appointment, or really any anxiety inducing activity means that your nerves are going to kick in. Tonight my nerves are kicking hard. Tomorrow I am going into the OR for some injections. The last time I was sedated things did not go well, and even though every team has been … Continue reading When the Nerves Kick In
First and foremost, while I have been in and out of the hospital, I want to thank my followers because after only having this blog for a little over a month I made it into the "Top 100 List for Blogs about Chronic Illnesses." All of that is because of you guys- so thank you! … Continue reading Breaking the Silence that comes with Tragedy
Between the RSD/CRPS blog, this website, and all the people I met, I commonly get asked two questions: #1 "Wait like you didn't remember anything?" *insert 1,000 other questions all at once about going through amnesia* and #2 How do you keep it so together and live your life all while being positive? I have … Continue reading You have 10 minutes.
This past weekend a couple of my close friends, who are also all bloggers, went on a scenic trip to the Stone Church in West Boylston, MA to get some new content for fall- and to also catch up because our busy lives make it impossible to see each other. A couple days before we … Continue reading Embracing our Braces