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The Girl On Fire

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Foxy Film

Just a gallery of photos of my dog, Foxy.

She loves stealing Mac & Cheese, lying around in strange positions waiting for the mail to come, and ignoring me. Enjoy!

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|And here you are living, despite it all.| Every morning starts out relatively the same for me: achy joints, jumping heart rates, nausea, low blood sugars- the list goes on. Then there are those other mornings, the ones that feel like death is upon you. I am sure you know what I am talking about. On days like that I have trouble being grateful for anything, and it’s so easy to throw myself a pity party. Despite this I try to find three things to be grateful for. Click the link in my bio to read more about this (also note this is NOT a positivity prescription) but it is a good challenge 👌🏼 Today I am grateful for: 1. The new Walmart leggings I got (yes, I officially got a pair to see what all the hype was about but now I understand) 2. The ability to work in bed even though it is discouraging and I have to take lots of breaks 3. Being able to brush my teeth myself this morning What 3 things are you grateful for? Comment below! #attitudeofgratitude #threethings #thankful #cultivategratitude 🥄 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Got to spend some time with this guy this weekend👌🏼 thanks Stephen for hanging out with us “old folks” this weekend and for fixing my computer 😘 For those who want an update, I am still sick so I am just taking things hour by hour and spoon by spoon 🥄 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Every three days we retape- even when I am super sick. For some reason I have acquired a virus or something and it is kicking my butt. Hoping to stay out of the hospital so I am taking things minute by minute and hour by hour. And I’m breathing- I’m trying to really hard to breathe through the nausea, joint aches, and headaches. Thankfully my two favorite guys (I.e. @jcnolin11 and @stephenmayo_jr) went to the apple store to pick up my apple haul 🙌🏻 new technology makes me so happy 💛 Not a good day but it was a day that I spent alive and I am going to choose to be thankful for that. #attitudeofgratitude #kttape #rocktape #luekotape #kinesiologytape 🥄 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

A day in Boston still counts if you are in the hospital right? 😂 seriously so thankful for @mauramaginnis and her willingness to take me in so @jcnolin11 could work today and tomorrow. Maura we are so grateful for you and Jared I am so thankful you were able to stop in after work and help the team create a stable plan. Also Maura looks way more sunburnt than she is because I’m so pale 🤣 Making the best of out of a hard situation 👊🏼 #bestfriends #friendship #hospitallife #boston PC: @jcnolin11 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Looking at what the future holds can be exciting and overwhelming at the same time- especially when you are waiting for test results, things to heal, flare to stop, calls back, and for certain appointments to come! I am so thankful that I get to walk (well, I roll) through life with this incredible man everyday. What is so great about storms is that it reminds me that even the sky gets overwhelmed and needs to “scream” a little bit. Navigating the chronic illness life together can be challenging but it is so worth it. Thankfully we also have amazing friends and family who help us out and join our fight so selflessly. Thanks to everyone who is helping us fight EDS and all it’s comorbidities 💕 PC: @mauramaginnis #cultivatehope #strongertogether #couplegoals #godsplannotours ⭐️ #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

We love that our little family is back together again, but it also meant we had to say goodbye to Caitie as she leaves tomorrow to start her adventure as a D1 Volleyball Player at @gardnerwebb in NC! She believed she could and she did! Caitie, we are so proud of you and cannot and wait to see you soar though school on and off the court 🏐 go bulldogs! #goodbye #missyoualready #dogmom #dogparents 🐾 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Did you know that the hospital has fluid warmers?!? How did I not know this (I suddenly feel like a newbie!) shades are on to help this throbbing headache and lactated ringers with dextrose is running along with other meds 👊🏼 not how I planned to spend my Friday night but I have my favorite nurse and an amazing doctor who is being nothing but supportive of getting this #potsflare under control. So thankful that God is showing His compassion through the ED team tonight 🙌🏻 #grateful #emergencyroom #thankful #godisgood 🙏🏻 P.S. shout out to my amazing husband who is just well.. amazing! 😘 @jcnolin11 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

“... Joy and gladness will be found in her, thanksgiving and the sound of singing.” Isaiah 51:3 I was reading through Isaiah 51:1-3 and really started digging in to it, and it greatly surprised me. This verse talks about our ruins and that doesn’t have to mean a physical building it can be broken dreams, failures, worries, and fears. Check out the link in my bio to read more about God’s faithfulness and how it relates to living the chronic illness life! #biblejournaling #writetheword #cultivatewhatmatters #inspired 🎀 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Technology amazes me! I have been dealing with lots of hypoglycemic symptoms for months now and we have been trying to find a way to test it without using finger sticks. My pain team (and I) didn’t want an RSD flare to come about again, as I have a longstanding bad history with RSD and needles. With the help of some friends we found the freestyle Libre and after lidocaine cream I did it! I did what I never thought I would have the courage to do. For anything to prick my R arm is a HUGE deal because of the sensory issues I have with that side of my body. (My BPs need to be on the L so I had to pick my poison essentially and do one or the other on the R.) For all my fellow spoonies with RSD that are worried about using a CGM- it is so easy and with the lidocaine cream I barely felt it. I can’t even tell it’s in my arm now! Who else had a victory today? Comment below so we can celebrate small and big victories 🎉🎉 #cgm #glucosemonitoring #hypoglycemia #victory #celebrate 👌🏼 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Lots of work was accomplished today! I finished my tending list for August and am so excited for tomorrow to come! It was so nice to have a low key day getting everything I needed to get done either at my desk or on the couch. Having a to do list and accomplishing those goals is always exciting! Living with a chronic illness doesn’t always make goals easy to accomplish, but today I am grateful for all that I got done. PT was also awesome today as they fixed my shoulder and neck tonight 🙌🏻🙌🏻 what did you accomplish today? Also loved spending #tendingtuesday with @jess_thore and @cultivatewhatmatters today- so grateful for you all! #smartgoals #cultivatewhatmatters #powersheets #planner ✨ #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

3 months since I married my best friend #bestdecisionever I love you @jcnolin11 🙌🏻😍 #wedding #weddingreception #dontstopbelieving #weddingshenanigans 💍 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Look what you made me d💍! So excited to see @taylorswift! @taylornation we are in sec 102 row 35 seats 1&2! Bring us to the #reproom please! #reputation #reputationstadiumtour #taylorswift #justmarried #couplegoals 🎉 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Another successful infusion in the books 👊🏼 didn’t get as much I my body typically gets as they just changed the plans 2 mins ago, so I may end up back in here sooner than planned💦 so it goes 🤷🏼‍♀️ So thankful for my teams that defend POTS and are willing to treat it as not all are ✨ Hopefully nausea and headaches will subside soon as we let my body readjust. #salineforpots #hospitallife #infusion #lactatedringers ☀️ #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

We have this beauty spontaneously overnight and she loves the new bed we got her 😍 #blessed #dogmomlife #shibainu 🐾 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Today has been a good day despite the fatigue. Sleep well friends ✨ #goodnight 🌙 #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Happy Birthday Maura! I figured it would be fitting that one of the first professional wedding video clips I share would be of us 🤣 I love you and I love that we had our own song and dance at my wedding! I cherish our friendship and hope you have an amazing day! Happy 22nd @mauramaginnis 💕 #bestfriends #happybirthday #wedding #weddingreception 📸: @ashleygreenphotography ✨ #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

Do you ever just sit down and marvel at God’s creation and just become awestruck that orchestrated this whole world- and he wants a relationship with you? That was one of the things on my heart today along with a few other things. I have been heavily praying over my genetic testing we had done 6 weeks ago and anxiously awaiting the results. God delivered them to me today when I finally stopped impatiently waiting and left it in His hands and guess what... I finally received an OFFICIAL EDS diagnosis!! I had one but without the genetic testing doctors can still question it if you haven’t had the blood work done- and I did! He also helped me accomplish two other things that felt like mountains today. So tonight as I get ready for bed, I will be thankful for His gracious help and that, even though He has some much he could be doing, He still has an interest in me. #godisgreater #godsplannotmine #thankful #genetictesting #blessed 📸: @mwallmann #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

|| “Life is like a cup of tea, it should be filled to the brim and enjoyed among friends.” || It’s #writethewordwednesday! Today I posted all about how @mauramaginnis and I hold each other accountable and spend time with one another! Click the link in my bio to see more pictures and accountability tips from our tea ☕️ #friendship #teatime #bettertogether #cultivatewhatmatters #biblejournaling 📸: @mauramaginnis #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #fallrisk #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness

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