A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness
If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart, see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…
If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT
Struggling to keep my salt intake up is a daily battle for me, unlike my husband and grandmother who I swear could eat salt from the shaker. Anyone with POTS has been told to utilize salt pills, but they hurt my stomach so I only take them when it's 100% necessary. To add insult to … Continue reading My favorite salty foods for POTS!
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of being Strong Series Introduction
Hospital stays require a ton of preparation. We always have a bag packed and ready to go. If you want to see my full packing list click here. Out of all the things I keep in my hospital bag, here are the 5 things I can't live without! 1. Blanket Having your own comfy, fluffy … Continue reading Top 5 Must Have Items in my Hospital Bag
This morning as I was doing my write the word, I came across this verse, and felt blocked. I didn't see the purpose in writing this verse and how it would help me "cultivate hope." Honestly, I was quite confused and almost bothered by it at first. I immediately stopped in my tracks and asked … Continue reading Joy & Gladness will be Found in Her
Apparently when my parents named me Cassandra that stood for "The Queen of Setbacks" or at least you would think so with how my life has gone. I am a meticulous planner, and have a day to day paper planner- it is my second bible. It doesn't surprise me that as I got older- and … Continue reading What to do when plans A, B, C- Z don’t work out
Dear Fellow Spoonie, First of all I want to say that I am sorry. I am sorry that your life didn't go the way you planned and I am sorry for the heartbreak you have had or are currently bearing. I am sorry for everything you have and will have to give up because of … Continue reading An Open Letter to the Spoonie who has had to Reinvent Themselves
Living the Chronic Illness Life 