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Living the Chronic Illness Life

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Tag: eds

The Joy of the Lord is my Strength

July 3, 2020July 3, 20201 Comment

A lot led up to you and me meeting here today. Living the chronic illness life is hard and I think it's safe to say that we all struggle to feel/experience joy. Joy was an emotion for so long that I lacked and even envied because I misunderstood it. Nowadays I talk a lot about … Continue reading The Joy of the Lord is my Strength

5 Tips for Traveling for Out-of-State Surgery

March 12, 2020March 10, 2020Leave a comment

When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me.  My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery

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Happy #tendinglisttuesday 🎉
This is the statement I want to start off with as we kick off #EDSawarenessmonth
Living with open hands is hard, but God does some of His best work through open hands. Imagine if we never let confetti go - we would never see the full beauty of it.
I was thinking about how important this Saturday is and what it represents.
Last night, we completed the first quarter of the Grace + Goals Accountability Collective and I am beyond grateful and so encouraged. I haven’t taken a leap of faith in quite a while because I couldn’t bear the thought of hoping for something and being disappointed.
Lean into this season; that is what I desire to do this quarter.

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