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Living the Chronic Illness Life

Intentionally Living Spoon By Spoon

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      • Intro Week: Welcome to the Thick of It
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Tag: #eds

Waiting Grows Faithfulness #portaversary

February 14, 2020February 20, 20201 Comment

A year ago today, we accessed my port for the first time. The port was placed on February 6, 2019, and was accessed on February 14, 2019. Jared and I don't really like valentines day (sorry it's just not our thing,) so the 14th has become a victorious day that we remember and celebrate God's … Continue reading Waiting Grows Faithfulness #portaversary

2019 a Year to Review

December 28, 2019February 20, 2020

2019 has held some of the greatest accounts of God’s faithfulness, yet alongside His greatness, this year has challenged me in so many ways spiritually, emotionally and mentally. Amidst these triumphs and uncertainties so much has happened and I wanted to sit down and recap it all with you. Before we jump into all that … Continue reading 2019 a Year to Review

Let’s talk about EDS

May 24, 2019February 20, 2020Leave a comment

May is Ehlers Danlos Syndrome awareness month, I have not been as active as I would have liked due to a dislocation this month. Nevertheless I reached out to all of you on instagram and asked you to send me the questions you have about EDS. Because I got an overload of questions, I am … Continue reading Let’s talk about EDS

These are a few of my favorite things

April 30, 2019September 30, 20191 Comment

Today I want to share with you 25 of my favorite things! They are in no particular order and I will leave links to everything so you don't have to search these items! Please note that I am NOT sponsored by any of these brands or products- I genuinely love them and use them everyday. … Continue reading These are a few of my favorite things

January Tending List

January 27, 2019January 27, 20192 Comments

If you don't know what a tending list- don't worry- I'm happy to explain. A tending list is a monthly goal planner from the powersheets (to learn more about powersheets and how I use them click here!) Tending lists are your planners best friend, they were created by Lara Casey from Cultivate What Matters. Here … Continue reading January Tending List

A spoonies’s step-by-step guide to #powersheets

January 19, 2019June 8, 201913 Comments

If you have known me for any length on time you know that I LOVE the company Cultivate What Matters! Everything from their lovely founder Lara to the stickers for the #powersheets and Write the Word Journals! If you are new to #powersheets, let me introduce you to the greatest goal setting book in the … Continue reading A spoonies’s step-by-step guide to #powersheets

Are the Holidays Holding You Hostage?

December 21, 2018Leave a comment

The holiday season can be very stressful, and stress uses up spoons like crazy! For the first time in all 9 years of having a chronic illness, this year I think I have figured out how to balance holiday activities and hospital trips. I am going to share my tips with you in hope that … Continue reading Are the Holidays Holding You Hostage?

Would You Treat Me Differently If…

October 5, 2018October 5, 2018Leave a comment

If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart,  see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…

Signs of Being Strong: taking care of your body when you just don’t feel like it

September 7, 2018September 7, 2018Leave a comment

You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it

Are You a Succulent Virgin?

September 3, 2018September 2, 20181 Comment

If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?

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“I thought, ‘Those who are older should speak, for wisdom comes with age.’”
“And Nehemiah continued, “Go and celebrate with a feast of rich foods and sweet drinks, and share gifts of food with people who have nothing prepared. This is a sacred day before our Lord. Don’t be dejected and sad, for the joy of the Lord is your strength!””
“Look up into the heavens. Who created all the stars? He brings them out like an army, one after another, calling each by its name. Because of his great power and incomparable strength, not a single one is missing. O Jacob, how can you say the Lord does not see your troubles? O Israel, how can you say God ignores your rights? Have you never heard? Have you never understood? The Lord is the everlasting God, the Creator of all the earth. He never grows weak or weary. No one can measure the depths of his understanding.”
“Friends love through all kinds of weather, and families stick together in all kinds of trouble.”
“What do you mean, ‘If I can’?” Jesus asked. “Anything is possible if a person believes.”
“I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me. No, dear brothers and sisters, I have not achieved it, but I focus on this one thing: Forgetting the past and looking forward to what lies ahead, I press on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us.”

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