A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness
When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me. My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery
2019 has held some of the greatest accounts of God’s faithfulness, yet alongside His greatness, this year has challenged me in so many ways spiritually, emotionally and mentally. Amidst these triumphs and uncertainties so much has happened and I wanted to sit down and recap it all with you. Before we jump into all that … Continue reading 2019 a Year to Review
May is Ehlers Danlos Syndrome awareness month, I have not been as active as I would have liked due to a dislocation this month. Nevertheless I reached out to all of you on instagram and asked you to send me the questions you have about EDS. Because I got an overload of questions, I am … Continue reading Let’s talk about EDS
If you don't know what a tending list- don't worry- I'm happy to explain. A tending list is a monthly goal planner from the powersheets (to learn more about powersheets and how I use them click here!) Tending lists are your planners best friend, they were created by Lara Casey from Cultivate What Matters. Here … Continue reading January Tending List
The holiday season can be very stressful, and stress uses up spoons like crazy! For the first time in all 9 years of having a chronic illness, this year I think I have figured out how to balance holiday activities and hospital trips. I am going to share my tips with you in hope that … Continue reading Are the Holidays Holding You Hostage?
If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart, see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…
You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it
If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT
Living the Chronic Illness Life 