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Living the Chronic Illness Life

Intentionally Living + Chronically Cultivating Spoon By Spoon

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Tag: #ehlersdanlos

5 Must Haves when Traveling with a Chronic Illness

January 9, 2022January 16, 20221 Comment

A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness

5 Tips for Traveling for Out-of-State Surgery

March 12, 2020March 10, 2020Leave a comment

When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me.  My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery

2019 a Year to Review

December 28, 2019February 20, 2020

2019 has held some of the greatest accounts of God’s faithfulness, yet alongside His greatness, this year has challenged me in so many ways spiritually, emotionally and mentally. Amidst these triumphs and uncertainties so much has happened and I wanted to sit down and recap it all with you. Before we jump into all that … Continue reading 2019 a Year to Review

Let’s talk about EDS

May 24, 2019February 20, 2020Leave a comment

May is Ehlers Danlos Syndrome awareness month, I have not been as active as I would have liked due to a dislocation this month. Nevertheless I reached out to all of you on instagram and asked you to send me the questions you have about EDS. Because I got an overload of questions, I am … Continue reading Let’s talk about EDS

January Tending List

January 27, 2019January 27, 20192 Comments

If you don't know what a tending list- don't worry- I'm happy to explain. A tending list is a monthly goal planner from the powersheets (to learn more about powersheets and how I use them click here!) Tending lists are your planners best friend, they were created by Lara Casey from Cultivate What Matters. Here … Continue reading January Tending List

Are the Holidays Holding You Hostage?

December 21, 2018Leave a comment

The holiday season can be very stressful, and stress uses up spoons like crazy! For the first time in all 9 years of having a chronic illness, this year I think I have figured out how to balance holiday activities and hospital trips. I am going to share my tips with you in hope that … Continue reading Are the Holidays Holding You Hostage?

Would You Treat Me Differently If…

October 5, 2018October 5, 2018Leave a comment

If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart,  see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…

Signs of Being Strong: taking care of your body when you just don’t feel like it

September 7, 2018September 7, 2018Leave a comment

You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it

Are You a Succulent Virgin?

September 3, 2018September 2, 20181 Comment

If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?

Signs of Being Strong: Going back to PT

August 20, 2018August 16, 2018Leave a comment

There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT

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I am bringing ALLLL the color this February!!
You will see more progress, when you plan for imperfect progress 💡
Intense schedules, perfect consistency, and Powersheets won’t guarantee you to long term sustainable growth.
Do you find that you try to do it all and keep starting your goals off strong, but your progress seems to dwindle over time?
When it comes to checking into your Tending List, you need to know these three things:
What would happen if you had accountability in your goal setting?

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