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Living the Chronic Illness Life

Intentionally Living Spoon By Spoon

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Tag: #invisibleillness

5 Must Haves when Traveling with a Chronic Illness

January 9, 2022January 16, 20221 Comment

A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness

2019 a Year to Review

December 28, 2019February 20, 2020

2019 has held some of the greatest accounts of God’s faithfulness, yet alongside His greatness, this year has challenged me in so many ways spiritually, emotionally and mentally. Amidst these triumphs and uncertainties so much has happened and I wanted to sit down and recap it all with you. Before we jump into all that … Continue reading 2019 a Year to Review

These are a few of my favorite things- Spoonie Edition

September 3, 2019February 20, 20201 Comment

Welcome to another edition of These are a Few of my Favorite Things! Today I am sharing 10 of my absolute FAVORITE products that help me live as comfortably as possible despite all the braces, needles, and tape. There are a couple you have already heard me talk about from my first favorite things post, … Continue reading These are a few of my favorite things- Spoonie Edition

Would You Treat Me Differently If…

October 5, 2018October 5, 2018Leave a comment

If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart,  see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…

Are You a Succulent Virgin?

September 3, 2018September 2, 20181 Comment

If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?

10 Small Things You Can Do to make Your Recovery a Little Easier

January 18, 20181 Comment

As I prepare to go into the OR on Thursday, I am getting all my ducks in a row so I don't have to worry about everything. My sole focus needs to be on recovering. Let me start out by saying, I am a control freak and that's no secret. Therefore, it stresses me out knowing … Continue reading 10 Small Things You Can Do to make Your Recovery a Little Easier

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As I tend to this garden bed, the Lord continues to tend to my heart.
Just need to take a moment to appreciate my man 🤟🏼
Since I started working on my refresh on the cruise ship, I have struggled to complete it. There are so many things going on that make for a heavy heart, not only in our world, but very much in my own life from disease progression to everyday uncertainty.
We always talk about how doing something imperfectly is better than doing nothing, and that applies to filling out your TL late!
Lord, let this prayer strengthen the posture of my weary heart and give hope to my overwhelmed mind.
This vacation was so, so wonderful ☀️

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