A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness
The holiday season can be very stressful, and stress uses up spoons like crazy! For the first time in all 9 years of having a chronic illness, this year I think I have figured out how to balance holiday activities and hospital trips. I am going to share my tips with you in hope that … Continue reading Are the Holidays Holding You Hostage?
If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart, see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…
You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it
If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT
Struggling to keep my salt intake up is a daily battle for me, unlike my husband and grandmother who I swear could eat salt from the shaker. Anyone with POTS has been told to utilize salt pills, but they hurt my stomach so I only take them when it's 100% necessary. To add insult to … Continue reading My favorite salty foods for POTS!
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of being Strong Series Introduction
Hospital stays require a ton of preparation. We always have a bag packed and ready to go. If you want to see my full packing list click here. Out of all the things I keep in my hospital bag, here are the 5 things I can't live without! 1. Blanket Having your own comfy, fluffy … Continue reading Top 5 Must Have Items in my Hospital Bag
Every morning starts out relatively the same for me: achy joints, jumping heart rates, nausea, low blood sugars- the list goes on. Then there are those other mornings, the ones that feel like death is upon you. I am sure you know what I am talking about. On days like that I have trouble being … Continue reading Three Things… You just need Three