When you live with chronic illness, and particularly conditions that are rare, rarely heard of, or largely misunderstood, it can be challenging to find the right team of doctors. Often times the top-rated specialists require traveling out of state to receive the best care possible. This is certainly the case for me. My name is … Continue reading 5 Tips for Traveling for Out-of-State Surgery
You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of being Strong Series Introduction
This morning as I was doing my write the word, I came across this verse, and felt blocked. I didn't see the purpose in writing this verse and how it would help me "cultivate hope." Honestly, I was quite confused and almost bothered by it at first. I immediately stopped in my tracks and asked … Continue reading Joy & Gladness will be Found in Her
13 “You are the salt of the earth. But what good is salt if it has lost its flavor? Can you make it salty again? It will be thrown out and trampled underfoot as worthless. 14 “You are the light of the world—like a city on a hilltop that cannot be hidden.15 No one lights a lamp and … Continue reading POTSie Devotional: Salt- We need to be it and eat it
As I prepare to go into the OR on Thursday, I am getting all my ducks in a row so I don't have to worry about everything. My sole focus needs to be on recovering. Let me start out by saying, I am a control freak and that's no secret. Therefore, it stresses me out knowing … Continue reading 10 Small Things You Can Do to make Your Recovery a Little Easier
Living the Chronic Illness Life 