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Living the Chronic Illness Life

Intentionally Living + Chronically Cultivating Spoon By Spoon

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Tag: #rsd

5 Must Haves when Traveling with a Chronic Illness

January 9, 2022January 16, 20221 Comment

A couple times a year Jared and I road trip to Pennsylvania to see his family, and like many with chronic illnesses, I struggle with lengthy car rides. Over the past 7 years, I have figured out what tools make the travel itself more manageable for my body. Today, I want to share my must … Continue reading 5 Must Haves when Traveling with a Chronic Illness

These are a few of my favorite things

April 30, 2019September 30, 20191 Comment

Today I want to share with you 25 of my favorite things! They are in no particular order and I will leave links to everything so you don't have to search these items! Please note that I am NOT sponsored by any of these brands or products- I genuinely love them and use them everyday. … Continue reading These are a few of my favorite things

Are the Holidays Holding You Hostage?

December 21, 2018Leave a comment

The holiday season can be very stressful, and stress uses up spoons like crazy! For the first time in all 9 years of having a chronic illness, this year I think I have figured out how to balance holiday activities and hospital trips. I am going to share my tips with you in hope that … Continue reading Are the Holidays Holding You Hostage?

Would You Treat Me Differently If…

October 5, 2018October 5, 2018Leave a comment

If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart,  see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…

Signs of Being Strong: taking care of your body when you just don’t feel like it

September 7, 2018September 7, 2018Leave a comment

You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it

Are You a Succulent Virgin?

September 3, 2018September 2, 20181 Comment

If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?

Signs of Being Strong: Going back to PT

August 20, 2018August 16, 2018Leave a comment

There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT

My favorite salty foods for POTS!

August 16, 2018August 15, 20181 Comment

Struggling to keep my salt intake up is a daily battle for me, unlike my husband and grandmother who I swear could eat salt from the shaker. Anyone with POTS has been told to utilize salt pills, but they hurt my stomach so I only take them when it's 100% necessary. To add insult to … Continue reading My favorite salty foods for POTS!

Signs of being Strong Series Introduction

August 13, 2018September 7, 20181 Comment

There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of being Strong Series Introduction

Top 5 Must Have Items in my Hospital Bag

August 9, 2018August 9, 2018Leave a comment

Hospital stays require a ton of preparation. We always have a bag packed and ready to go. If  you want to see my full packing list click here. Out of all the things I keep in my hospital bag, here are the 5 things I can't live without! 1. Blanket Having your own comfy, fluffy … Continue reading Top 5 Must Have Items in my Hospital Bag

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We got moved up to ICP for the night (ICU but less intensive) and they're trying different things to manage the pain and keep her relaxed for the night. Sorry for the lack of update today. For the most part there won't be a lot of updates this weekend, we're just finding ways to manage pain and figuring out what will work best for while we are in here. As far as we know there's no plan to move Cassie any time before they come to adjust her cast on Monday afternoon #livingthechronicillnesslife
Today I conclude the first quarter of A Cultivated Life, One on One Goal Coaching and Accountability through Grace + Goals 🎉
I’m really passionate about this #tendinglisttuesday tip! (Also you might want to read this whole caption…. 😏😉🥳)
Here’s the thing about intention living, it *needs* grace to thrive.
We are 5 days away from Refresh + Reset✨
Refresh + Reset is 7 days away!

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