I know this blog has been long overdue but now that I have all of the pictures I am ready to share the ups and downs of getting a brace fitting dress. Now it may be hard to believe, but yes we did rip apart my wedding dress. Let's go back to the beginning so … Continue reading We ripped apart my dress! Part One
If I was a presidents spouse/daughter, would you treat me differently? Would you look at my chart, see I have a rare illness, and ask me about it and look it up or would you assume I’m making it up just because you haven’t heard of it or only know a couple things about it? … Continue reading Would You Treat Me Differently If…
You know those days when you just want to take a 5 minute break (more like 5 year break) from your body? We all deal with this feeling at some point but the other day I hit my max. Jared and I were at the hospital and I was having a particularly hard day. We … Continue reading Signs of Being Strong: taking care of your body when you just don’t feel like it
If you have followed me for any length of time you will know that I love, love, LOVE succulents and am a crazy plant lady. I do not know where you are in your plant journey, but whether you are a seasoned pro or a virgin- hopefully by the end of this post you will … Continue reading Are You a Succulent Virgin?
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of Being Strong: Going back to PT
Struggling to keep my salt intake up is a daily battle for me, unlike my husband and grandmother who I swear could eat salt from the shaker. Anyone with POTS has been told to utilize salt pills, but they hurt my stomach so I only take them when it's 100% necessary. To add insult to … Continue reading My favorite salty foods for POTS!
There are many ways people show strength. With a chronic illness, it is easy for outsiders to see us as strong, but we seldom agree with them. Being strong should mean that you can compete in the olympics or hike up a mountain, not lay in bed all day. There are so many ways we … Continue reading Signs of being Strong Series Introduction
Hospital stays require a ton of preparation. We always have a bag packed and ready to go. If you want to see my full packing list click here. Out of all the things I keep in my hospital bag, here are the 5 things I can't live without! 1. Blanket Having your own comfy, fluffy … Continue reading Top 5 Must Have Items in my Hospital Bag
Every morning starts out relatively the same for me: achy joints, jumping heart rates, nausea, low blood sugars- the list goes on. Then there are those other mornings, the ones that feel like death is upon you. I am sure you know what I am talking about. On days like that I have trouble being … Continue reading Three Things… You just need Three
This morning as I was doing my write the word, I came across this verse, and felt blocked. I didn't see the purpose in writing this verse and how it would help me "cultivate hope." Honestly, I was quite confused and almost bothered by it at first. I immediately stopped in my tracks and asked … Continue reading Joy & Gladness will be Found in Her
